Another Bad Day

This is just one of those bad days in regards to hospital trip in my entire life. We had an appointment with the ‘Specialist’ in HKL. The appointment was at 11am.

Initially, the day was quite perfect with not much of hassle with both daughters. We were able to have our ‘mamak’ breakfast peacefully. We reached HKL at roughly 9:30am. There’s still a buffer of 1 ½ hour for registration.

The pressure starts to build
My hubby wanted me to go ahead with the kids meanwhile he searched for the car park. I refuse. I don’t think I am able to control both Alya and Nadiah without my hubby, knowing their unpredictable behavior and active movements. The fact that it was not easy to find a parking space plus there’s still time before the appointment itself, I decided to stay in the car.

True enough, there is no car park at all. We went round and round searching for a car park but keeps on failing to get one. Until the clock turns to 10:30am, my hubby scolded me because I didn’t want to go ahead with the kids. I mean, it is not that I don’t want to, if I can handle both of them, I will or if I were to go with only one of them first, I would. Anyways, it’s too late.

At that moment, he swerved and drove towards the paediatric clinic. Unbelievably, right in front of us, a car came out from the car park. Finally, mission accomplished. Pheww!!! We spent 1 hour, circling the area for car-park-search.
Another battling with patience
We made it before 11am to register. The doctor was not even there yet. That’s a relief. Our number is 23 and 24. However, the relief was not for long. The clock already shows 12:30pm, but no one has been called. Finally, at 1pm, there’s a ‘ting-ting’ sound, the number ‘1’ was displayed on the screen. And, my numbers are 23 and 24?

Both, Kakak and Dedek, played, cried, played again, cried again, few times of nappy changes, junk food eating, milking until 3:30pm, the ‘ting-ting’ sound with the number ‘23’ appears. Without wasting more time, we dashed in the room just to see the unfamiliar face. With a sad smile, I repeat the same old story again. In my head, I’ve already spilled the history to one of the doctors earlier on my first visit in HKL. So, how come, I have to repeat it all over again to a different doctor? Don’t they have the record or something? I’m like, what the….?

My Saviour
After a while, talking with the ‘new doctor’, the ‘Specialist’ finally made his first appearance. The moment he got in the room, the whole process became faster. He didn’t bother to ask about my daughter’s history no more. To him, he was more concern on the blood results taken earlier. He said, according to the results, he could see that the ‘copper’ test was low. In simple English, it actually means that the copper/acid amino were not transferred to the brain as per needed. He then, asked to repeat the copper blood test. He wants to double confirm the test. He added that he needs my daughter’s 24 hours urine as well. In 3 weeks time, we need to be back for further glucose checkings, ultrasound and so forth. He did mention that he will send over the reports to Denmark and that will cost us RM4K on each. I can only bit my lip.

I was happy though, because at least I am nearing to the answers. The doctor said that it is surely genetic. So, after all the tests I would finally get to know the cause of it. As for now, he just guessed that they would probably suffer ‘Menkes (kinky hair) syndrome’.

To our surprise, the whole session ends at nearly 5:30pm. Just imagine, we were here from morning when the hospital was full with people until evening, when the hospital is nearly empty. We didn’t have lunch and we were tired and pretty famished.

Wrapping Up
We drove to the nearest food stall and filled our empty stomach. And then, we head home.

HOME SWEET HOME.